Well, as I thought, she did not get her 3:00 dose yesterday, and because of the rapid and then irregular heart rate, they decided that they were not going to give her the 11:00 dose either.
So.... She is done!!! 10/14 doses completed this time down. For a total of 24/28 doses between the two trips to the UW. She is worn out!
She slept pretty good last night, up until about 2:30 in the morning, when I heard her monitor dinging because she had pulled an electrode or two off. I got up to fix it, and while I was placing new electrodes, I noticed a purple string laying on her bed by her pillow. "What could this be?" I wondered. Turns out she didn't just pull electrodes off, she managed to pull her PICC line out!!
Fortunately she was off the blood pressure medication by then. I grabbed the nurse who came in and inspected the end of the PICC line and thought a piece had possibly broken off in Heather's vein. Minor panic ensued until the PICC nurse came in and verified that the PICC was intact. Crisis averted. Then we had to try to convince a confused, drugged patient that there was nothing to worry about. Fifteen minutes and some anti-anxiety medication and she was able to relax and fall back to sleep. When she woke up this morning, she told me about a dream she had in which she pulled out her PICC line.... Not a dream Heather :)
Today, she has been sleeping most of the time. After she had the heart rate issues yesterday, the doctors ordered an echocardiogram (essentially an ultrasound of the heart) to be sure that the heart rate issues were caused by the IL-2 and not some other underlying issue. We haven't heard the results of the echo yet, but should a little later today.
So now, more rest and observation. She is still managing to sleep, so we have good hopes of going home tomorrow.
Can't wait....
YAY!!! We can't wait until you come home. Zak and Lauryn have a little something they've been working on for you! ..........okay and maybe i do too!!!
ReplyDeleteCan't wait for TEAM DEVLIN to return!!!
Love you guys!!! XOXOXO
Go Team Devlin!!!! I'm so thankful she's getting such great care at UWMC and by you, Kelly. THANK YOU for keeping us all updated, and THANK YOU for taking such great care of our girl.
ReplyDeleteWish we could be there to give u real hugs but virtual ones will have to do for now.
ReplyDeleteNothing wrong with ten doses! Way to go. Lots of hugs to both of you. We continue to pray for strength, hope, and healing!
ReplyDeletelove, Bill and Dianne
I'd say pulling out her PICC is a definate sign that she is done and ready to GO HOME!!!
ReplyDeleteNext she'll be packing her bags...:)
Hope you are on the road soon.
Miss and Love you both. ~Colleen