Saturday, November 5, 2011

Less Itchy, but....

Heather's itchiness has either subsided, or she is simply becoming too exhausted to care. She just had her 7th dose at about 3:30. She almost didn't get it though.  She is back on the pressor medication that she needed to support her BP last time, and the nurse was just able to get the dose down low enough that the doctors would allow her to receive another dose of the IL-2. 

The thought of having to miss a dose was vey distressing to Heather. She is set on, once again, getting all 14 doses. The doctors and nurses were amazed on our first trip down here that she got all 14. She has been told by everyone, including me, that she will very likely have to skip a dose or two on this trip down. She plans on proving everyone wrong :) If she does have to skip a dose, it will not be because she has decided that she does not want any more of this evil stuff pumped into her veins, but rather because her BP is way too low. It will be met with much protest and resistance from Heather!!  

I have spent most of the afternoon doing laundry.  I have already stated that we are so fortunate to be surrounded by such a great support group, but today, sitting in the "family room" here waiting for the world's slowest dryer to do what it is supposed to do, I realized just how fortunate we are to live in the part of the country, and even part of the world we do.  I talked to several families and I was the only person from Washington state. People come from all over the country and world to receive treatment from a facility that is right in our back yard!!!  One family had been bounced from The University of California, to The Mayo Clinic, to Stanford, then Stanford said, "We could do you your treatment here, but we are not very good at it.... You need to go to the University of Washington." Go Huskies!!!!

Thanks so much everyone, I will keep you posted the next few days until Heather regains control of her fingers again and you will actually be able to understand what she types :)

Kelly

7 comments:

  1. So grateful for the update Kelly! Thank you! I feel sorry for the person who tells her that she will have to skip a dose! She is amazing, Heather is my Hero! =) Love you both!

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  2. We are so lucky for so many reasons ... for awesome friends and family, for access to amazing medical care, and for another beautiful Fall day. I hope Heather could at least see outside for a minute to enjoy it and maybe envision herself crunching the leaves around Padden. Thank you as always for keeping us updated. You're in my thoughts and prayers everyday.

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  3. We are praying for the both of you, good luck Heather and Kelly. Love Starkey's

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  4. We are keeping you in our prayers! Thanks for keeping us updated. Best wishes from the Carsons!!!

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  5. Thinking of and praying for you Heather... and Kelly too :) <3 Jenny and Paul Ingram...

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  6. Thanks for the update, Kelly! We're keeping you both in our prayers. Love and Hugs to both of you from The Graddons!!

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  7. Keep up the good work, both of you! Love reading the updates...Heather, you are amazing! Kelly, you are amazing! You have to get well soon...I have a cleaning scheduled with you...no one can clean my teeth like Heather. {hugs to you both} Love, the O'Connor's

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